Hi everyone

Can someone enlighten me please... Am new to this so don't know what to expect. Can you help???

My main probs last year when diagnosed with ra were:-


High 'Rheumatoid Factor'/ positive 'anti ccp' results.

Swollen finger joint on left hand.

3 (felt broken) toes + big toe/ bunion area on left foot .

Big toe/bunion area on right foot.

Swollen ankles.

Painful to walk and felt so fatigued

There are probably things I have forgotten to add above that may be important so please ask questions if you need to know any more info ...

I take 15mg Mtx weekly, folic acid 5mg next day, and plaquenil 2 x daily now, amongst others & these have bought down the swellings and put my finger and 3 toes in remission(my words as I don't have the pain & swelling in them now).

Recently, the big toe joint/bunion area on the left foot feels spongy and is very slightly swollen,mildly warm, but not hot or red inflamed. When I showed this to my gp and to the rheumy nurse, they both said that my bloods/inflamatory markers were excellent now, and kind of dismiss this spongy swelling...

I have read on the internet that you can still have active ra even though the bloods come back as normal...

What I want to know is should I be worried about it and make sure i get treatment for this spongy toe joint or is my gp & rheumy nurse right??? sort of put up with it???

Please put my mind at rest... Jan x

Yes I beleive you can still have all the effects of RA although it may not shjow in your bloods.

Sounds like you should call you RA nurse and ask for advice.

Let us know how you do

Rose